January 8, 2013

Six months!

Believe it or not, it has been a little more than six months since Tim received the incredible gift of a new heart, a second chance at life.  Yesterday he went for his six-month heart biopsy.  The day went quite smoothly.  We made all the regular stops - blood draw, ekg, cath lab.  Tim was in a pretty agreeable mood.  Not too chatty, but content to play his iPod and watch movies.

The results of the biopsy came back today.  It was not a perfect 0, but pretty close.  The result was 1A/1R which indicates minimal rejection.  It is not uncommon, and it does not require any additional treatment.  The other factors they look at - heart pressures and BNP - were good, so unless something changes, we will not need to see cardiology again until mid-March.

Next up we do have appointments with both the Renal Department for a check up on Tim's kidneys (they are fine, we just want to keep them that way), and in February a follow up with Neurology.  Hopefully we can start to wean Tim off of his anti-seizure medicine then.

Today was Tim's first day back at school since winter break, and he had a good day.  It has taken some time, and patience on his teacher's part, but Tim seems to have found his place in school.  He is happy to go, and trying very hard to learn all his letters and start reading.  We are very proud of the progress he has made in the last few months.

It is incredible to think where we were six months ago, and even where we were a year ago.  Last year right before Christmas, Tim spent a week in the hospital getting his pacemaker repaired.  This year, he was able to celebrate with friends and family, his pacemaker no longer helping him stay alive, but instead sitting in a drawer.  As his parents, it is so wonderful to see the transformation.  So far, 2013 is shaping up to be a great year for Tim, and the rest of us.  We hope it treats you well too!

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