June 4, 2012

Let's Catch Up

We're sorry we haven't posted in the last couple of days, but in many ways there wasn't much to post about.  After a fair amount of difficulty in getting Tim stabilized on Thursday and Friday the doctors were finally able to get him to a place where everything was pretty much where they wanted it in terms of heart rate and rhythm, blood pressure and so on.  Adjustments were made along the way to try and wean him off of various medications as they felt comfortable in doing.  Unfortunately the pneumonia that the doctors had seen early on was not  resolving itself very quickly.  With that in mind they took a slow and steady, small steps approach to trying to get him ready to come off the ventilator.  It made for a slow moving weekend, but in our experience that's about par for the course in the hospital.  At least this time around we didn't feel like the doctors were avoiding making a decision and instead were really just giving Tim time to recover his heart strength as much as possible before extubating him.

It looks like that recovery time was well worth it as Tim was much more active and alert this morning.  When Christine arrived he was as talkative as he could be with a tube down his throat.  He was answering all sorts of questions, followed directions from the nurses, asked for some water, and asked if he'd already had his heart transplant.  He was generally showing everyone just how with it he was.  Along with this good news came some additional excitement as the hospital had us be interviewed by NBC5 about the upcoming move to the new Lurie Children's Hospital and how we feel about that in light of Tim's transplant need.  While we had the spotlight we did try to talk about Tim and his network of friends and supporters and some of his history in hopes to get more people interested in our little man and continue to follow along with his journey.  We'll all have to see how the story turns out - we were told it would run either at 4:30 or 6 tonight.  If we find a link to the story we will definitely post it so everyone can watch.

Otherwise, the plan continues to be that Tim will be taken off the vent tomorrow which is great news for everyone - we all are missing Tim's voice even if he may be more than a little demanding once he starts talking. That means that Jeff will start spending nights at the hospital with Tim while Christine and her army of helpers will cover the daytime hours.  Anyone interested in joining that army of helpers, please go to the website https://www.lotsahelpinghands.com/looking-for-community/results/index.php?location=60148&range=5 and search for the group "Tim Gets a New Heart" and ask to join.

As always, thanks to all for your continued support - you have no idea how uplifting it is to know how many people are behind Tim and our family during these difficult times.

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